Social media has been flooded with tributes, memories and messages of support for the woman who vowed to help the search for a cure, and so stop families being torn apart by the disease.
Supporters who had never met Connie left touching tributes on the Love Your Sister Facebook page, which has received more than 50,000 comments and tens of thousands of shares.
Laura Boland posted: "Vale, Connie. You were such a shining light. Our world is better for having you in it. Thank you for your gift of honesty, courage and truth to this village."
Ms Johnson and her Logie award winning brother, Samuel, set up the Love Your Sister charity soon after Connie was diagnosed with terminal breast cancer.
Together, they worked tirelessly after Ms Johnson's diagnosis to raise money for a cancer cure and prompt women to be breast aware.
Mr Johnson shared the news of her death on social media, posting: "We lost Connie today. Or, as she asked me to say, she died of cancer today... Trust me, she was genuinely cushioned by your love, till the end."
"Following Connie's journey has been inspirational — she has been incredibly real, beautiful and honest. Her work will never be forgotten. What a brave soul, the world was lucky to have her x " Courtney shared.
"All anyone can hope is to make a difference in this world and Connie, you have done that in spades... both in raising your boys and in creating this village. You are so very, very loved. Rest well dear one" Barb Watson wrote.